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Register for a Free DNA Test for 3 Specific Conditions (10,000 Tests Will Be Offered to Persons Aged 18-40) @ Monash DNA Screen

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DNA testing can save lives by helping to take preventative action against disease risk. DNA Screen, led by Monash University, is offering secure, free DNA testing to identify risk of cancer and heart disease that can be prevented or treated early.

One in 75 Australians have one of these DNA variants, but many don’t know it. DNA Screen is offering 10,000 18 to 40-year-olds across Australia a free DNA test to look for variants that increase the risk of some cancers or heart disease.

A saliva sample, collected simply at home, is all the test requires.

The world-first DNA Screen pilot study is funded by the Federal Government and led by Monash University, in collaboration with institutions and researchers from around Australia. Personal data collected by the study is private and confidential.

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  • +1

    Please note that registration does not guarantee participation in the study.

    Currently, the study is limited to 10,000 people, meaning not all people who are interested in the study will be able to take part. We hope to raise more funding to screen more people in the future. If you are randomly selected to participate, we’ll send you a separate link via email/SMS to ask you to consent electronically and send you a saliva DNA collection kit.

    Looks intently at click number at top of deal

    • +1

      Clicks do not guarantee that someone has applied to participate in the study.

  • This is more of a competition, because they will select the winners based on criteria only known to them.

  • +2

    genetic technologies do these tests but your looking at $500-$1000, so worth taking advantage if you have a family history of cancer etc..

    • Breast cancer test is free of family history

  • +1

    'Secure'.

  • +1

    “If you are not paying for the product, you are the product”

    • +3

      Dude, you comment is 1hr too late. Search above 🤣

    • +1

      we are the product of ozb

  • Which is precisely why people over 40 are not people - no free testing for this cohort of non people

  • +18

    The only way I would use a service like this is if the results are for me, and no one else. No one can match the results to my name. Want to anonymize the data, strip my name from it, and use it in studies? That's okay.

    It doesn't go on my medical record. It doesn't get stored in a government database. It doesn't get sent to insurance companies, etc. Now or in the future, without my explicit permission (and not buried on page 54 of a T&Cs PDF).

    When I had to update my superannuation insurance, one of the questions was 'Have you ever had a DNA test?' Now there's a catch all. As soon as you say 'yes' you're flagged, and you can be damn sure if you ever claim on the policy the insurer will do everything to discover if you knew about any risk factors you didn't disclose when signing the contract.

    • +3

      On the upside the DNA test might be able to reveal any risk of cancer or heart disease you may have, prolonging your life..

      • +7

        There is a large upside to having a DNA test, that is true. That's why I would be happy to have the test if only I get the full results. Right now that's not the case.

  • -1

    Has ANYONE actually had a call back from these Monash people???

    Seems like a scam.

    No-one has had anyone called back by Monash.

    • +2

      Of all the concerns expressed regarding this study, that's the only one that is silly. Don't buy lottery tickets - you have to wait to see if you won. If they were legit, you'd be told before you left the shop…

    • I know right

      I bought tickets FOR Tuesday's OzLotto draw

      Still no PHONE call??1/111!

      SCAM???? /s

  • +1

    Guess I should start by getting my Permanent Residency first.

  • +2

    Here is their specific Participant information sheet which has a lot of info on what they are doing, and basic stuff you should know before signing your consent and sending your spit to them.
    This is also found on the first page of the registration form.
    https://dnascreen.monash.edu/documents/DNA_Screen_Participan…

  • +4

    With this many clicks, I hope they identify the bargainer gene

  • +2

    might send in my partners dna ……would help me plan my future ……..

    • send in your in-laws DNA

  • +21

    This is not a deal.

    You potentially letting insurance companies get access to your DNA code and thus letting them deny you and or increasing your insurance rates later in life.

    • +6

      100% agree with you… I'd be Extremely cautious.

      • +7

        Not fair in the sense of insurance. It is a way of reducing anti-selection and maximizing returns and is not how insurance was designed to work.

        Insurance was created to pool various risks in order to reduce unknown costs. Over time insurers found they could turn unknown costs into known costs by grouping similar risks and then puting a cost + profit value on those risks.

        This is not insurance, it is risk pricing and insurance industries are regulated to stop this type of behaviour all over the world. (Think of community ratings for health insurance in Australia).

        Source: I'm an actuary

        • -8

          There are three kinds of actuaries. Those that can count. And those that can't.

          An actuary is someone who wanted to be an accountant, but didn’t have the personality for it.

          Also airfares should be based on weight, charge the fatties for the fuel they use and extra space they take up

        • +1

          Good reply !

    • Give fake details for name, If they are really just after demographics and research it won't affect their data and you can keep your data private.

      • +4

        Still may have to declare it to an insurance company at some point

    • +1

      None of this is remotely true.

      It's against the law to charge somebody more for health insurance because of their health risk:

      Most insurance is risk rated – for example, car or house insurance. Private health insurance is community rated. This means:

      everyone pays the same price for a particular policy
      a health insurer can’t refuse to insure you or sell you the policy you want to buy
      you are guaranteed the right to renew your policy.

      In Australia these risks are managed through mandatory waiting periods and exclusions for particular services at different tiers, not jacking up prices for people with (insert condition).

      You cannot be denied private health insurance.

      • +5

        There are other forms of insurance that it matters for though, such as life insurance, travel insurance, and other forms of insurance whereby pre-existing knowledge can be a disqualifier. Also who knows what changes will come along in the future. Given the terms cover access to your current & future health information (as outlined by a previous comment), I would trust none of it. It's one thing to provide consent based on current positions, it's another to provide it based on future uncertainties

        • +7

          Imagine being (mod: edited) enough to not want to not know if you have a serious medical condition so you can save a few bucks on travel insurance

          "LOL suddenly dropped dead from a weird heart thing but TAKE THAT Allianz"

          I guess some of you don't need to imagine

          Like those of you who downvoted somebody quoting a government website about health insurance law

          Also who knows what changes will come along in the future

          People who get genetic testing so they know if there's a good chance they're going to develop a serious medical condition?

          And they say irony is dead

    • It could be a deal
      It may detect an issue, and early intervention will allow you to generate more income rather than be buried somewhere…

  • +8

    I love OzBargain. Whenever there is a deal to get a free $10 gift card by signing up and providing your personal details including ID verification - everyone is happy and clapping hands.

    When there is a chance to participate in a medical research for free - everyone is worried about insurance and privacy. If you are in a high-risk group, it is better to know now about potential issues and keep monitoring then to worry about your insurance premiums.

    • Not everyone, there's always the Karen who, despite selling their soul on Facebook, will cry invasion of privacy etc.

    • +2

      This lol
      Pretty sure Monash Uni could learn more about the people by reading their public comments on socials than by screening their DNA

    • I'm worried about life insurance as I have a child who probably won't ever be able to look after themself.

  • +11

    When ANU got hacked and all my personal info got leaked, I got some soppy non-apology email. Trusting a university with your DNA? No thanks

    • +1

      or the time UWA had a bunch of old laptops containing student info laying around in an office which got stolen. yet they could spend $100k on two electric buggies for their security guards to hoon around in.

  • Seems a bit ageist….

  • +1

    I'm not doing this test, just in case they find I have the "Broden" gene

  • Remember when they say if you don't pay for a product, you are the product ?

  • +1

    awesome find out via DNA testing what diseases I might get.

    go to get life insurance, lie about dna testing ever being done, get one of the said diseases on the before mentioned dna test I didn't do, life insurance ban hammers me.

    seems like a good idea……….not

    ignorance is bliss in this case

    soz but thats gunna be a down vote from me, way too risky for basically no reward

    • +5

      So you'd rather die from a predisposed disease that you could have prevented by lifestyle changes, because insurance premiums? Strange logic.

      I don't trust anyone to hold my DNA in a confidential database either, but that's because I have no faith in our government not to compel the hand over of the data or the ability of a university to properly secure it indefinitely.

      We've seen what happens with other countries with DNA records, and our government is particularly snoopy and unrestricted by civil rights.

      • +4

        these tests dont confirm you will get it, they just show you may have a predisposition to getting it.

        • +2

          I think I'd like to know if I had a predisposition to something. Too old for their study though.

          Still don't trust our powers that be. DNA data is a fingerprint on everything that will dob in all my descended relatives for any suspected crime forever. I don't want to do that.

          • @illogicalerror: It is not foolproof. The science is up there with Theranos.

            This is why they are still doing this medical trial. This is a medical trial believe it or not. The further data received may lead to certain DNA sequences being dropped from the "increased risks" category.

            So, if you are getting yourself into this trial. It is best you know upfront everything and it seems the team at Monash has conveniently ignored this disclosure.

    • -3

      This is not how private health insurance works in Australia. See my earlier comment.

      You have zero incentive to lie about the outcomes of a DNA test. You would only need to disclose such a test if it revealed you presently have a condition.

      Even then, you cannot be declined cover or made to pay more for cover because you have a medical condition, or are more likely to have a medical condition.

      • +4

        sure for private health cover no

        most people are talking about life insurance cover here

        • oh so like in this comment

          disclose this information as an existing condition to any future health/life insurance providers which may increase premiums

          Or this comment

          discriminated against when applying for health/life insurance policies

          Or this one

          As all health insurance providers (and so other services as well), have rules

          • +3

            @GrueHunter: ok now do the same again, but pull out all the people who are talking about life insurance only

            remember i said "most people" not "all people"

          • +2

            @GrueHunter: Yeah, the issue is with life insurance, not health cover. Most people confuse the two.

            The main restriction on health cover is if you are already sick before taking out cover. Consequence is that you just wait the 12-months before getting treatment if sick. Zero consequences if you are predisposed to a possible sickness. Having a genetic predisposition to possibly becoming sick plays no part in the policy.

            On the other hand, life insurance policies require you disclose knowledge of actual or possible health issues, weather they materialised already or not. Then they put in conditions limiting or rejecting payouts based on the probabilities of you dying by those issues. These are never lifted.

            So yeah, this DNA test results would impact life insurance policies but not health insurance policies.

    • +2

      Life insurance won't save you if you develop pancreatic cancer & it's not discovered until stage IV. As someone else pointed out, not knowing about a potentially life-threatening condition so you can save money on insurance, whilst the absolute epitome of Ozbargain, seems very, very misguided.

      • +1

        but think about being able to get the insurance cover so when you do find out and regardless of the time your find out you die, at least you will get a pay out

        • I'd rather be not-as-wealthy and survive (and have my kids know they are potentially exposed too) than die younger than would be expected. Save the money spent on insurance & DCA invest instead, the outcome will likely be similar.

  • -1

    People are way to trusting or simply living in ignorance, knowledge is power, trust your gut..
    Knowing Monash Uni your information is probably secretly funnelled straight to a Chinese Data Base to be weaponised against you for the next Pandemic. “Safe and Secure” lol there is no such thing.

    • +3

      Where's that weird clown music coming from

      Never mind, found it

    • -1

      Or more so Moderna…

  • +1

    D'oh! Just turn into 41, wish I can turn back time to be part of this science experiment

    • +9

      big leap from using google to use gmail or photos and handing over a sample of your DNA

  • Awful regex on the email address field, doesn't consider that + is a valid character in gmail addresses.

    • +1

      Possibly on purpose, to ensure people don't give them no-reply email addresses

    • KFC have banned it too

    • use 'full stop' ?

      • That works, but I typically append the name of the website after the plus so I can tell what is coming from where or the origin of a leak (in the event the people using the leaked email don't just trim out the text after the plus). Can't append a website name with dots.

        • :-)

          i know about the 'plus' tweak,
          but felt that you still had another option,
          if you really wanted to participate.

        • If I were a scammer, and hacked a website to steal your name and email address, I’d put the emails into a csv and filter for all addresses that have a + before the @. Then I’d make my software remove the + and the text between the + and @. I’d then sell my clean, filtered data, yours included. You’ll never know who sold your data.

          You’d be better off with apple’s Hide My Email or something like Firefox Relay.

          • @xemi: A lot has changed since August 2022. I have an alternate non-gmail method I've implemented since then that is immune to the faults of the previous gmail method.

  • +2

    Honest question: For those concerned about privacy of information, what are you worried about?
    Even if it was public, what is the problem or implications of that? Not being sarcastic or anything just trying to honestly understand as I personally don't mind my information being disclosed in general.

    • +3

      A big one is being discriminated against when applying for health/life insurance policies as these test's can show you are more likely to be hit with. There is also the chance of the university having a data breach and your DNA and by association you details (name, DOB and others) being put in potentially malicious hands.

      • +2

        This

        If the data couldn't be used in determining insurance premiums or suitability (and this was protected by law just like private health insurance) then sure sign me up.

        my contact details being breached via privacy doesnt really bother me - I mean cmon I use social media - all privacy to my name / email / phone number is gone anyway

      • +1

        Thanks for explanation.

        My question now would be why would that be considered discrimination? Isn't the information actually the truth about you?
        As all health insurance providers (and so other services as well), have rules, isn't that just following them if you want their services?

        Regarding a data breach, what potentially malicious things someone could do with your data?

        • +1

          Maybe discrimination is the wrong word but I think it's a bit unfair that I could potentially be charged higher premiums or not given a policy at all just because I did a DNA test while someone who has the same conditions or likelihoods as me gets charged less because they haven't done one.

          Identity theft is one thing malicious actors can do with your data. Personally, I know how much data is worth (businesses pay huge money for data) so if it's worth that much, why would I give it out for free?

          • @jksk13: Thanks again.

            I see where you are coming from. In my understanding, those are two separate things.
            The fact that you could potentially be charged higher premiums or not be given a policy at all is, although unfortunate, part of the rules of insurance companies and how they work. In that regard, you did nothing wrong, and if you want their services, gotta accept their rules.

            Regarding the other person with same conditions receiving a benefit that you didn't, it is totally wrong indeed. Technically that person should be liable according to the rules of the service they are hiring. But that's the person's "fault" for not disclosing the truth, and also the company's fault for not finding out the truth correctly. In that sense, isn't it "good" that companies should try to find out the truth as much as possible so it keeps it as fair as possible to everyone?

            In my opinion, although it seems "unfair", it's similar to as if I did something 100% correct and someone else did just 50%, and got the same benefit as I did and got away with it.
            Instead of me now saying it's unfair and try to do just 50% next time, (which would drive the system to become stricter and stricter over time), why not push for everyone to do the right thing?

            As for the identify theft and data worth, I think that's a great point and I totally agree, information is worth a lot and shouldn't be given for free!

            • -2

              @mugenkun: FFS, where are you all getting this idea that you can be charged more for health insurance if you have a medical condition? You can't. It's illegal. End of story.

              • +1

                @GrueHunter: They are talking about income protection and life insurance, where it is definitely legal to charge extra or deny insurance based on pre-existing conditions and risks. They are not talking about private health insurance.

                • -2

                  @Melburnian: So that's why they wrote "A big one is being discriminated against when applying for health/life insurance policies"

                  Maybe get some genetic testing for dyslexia, yeah?

    • It’s getting harder to verify your details now have you noticed? You don’t just need username and password, you need 2FA now that could include your finger print or Face ID to back up your security key. When the Optus leak happened passports, drivers license were stolen - this was previously how people identified themselves abroad.

      What if a criminal in 2052 bought for $50 mugenkun’s name, address, drivers licence, and Face ID on an old burner iPhone 12 after leaving a dead body in a hotel room purchased under a credit card signed up for under your name? Now you are wanted..

  • DNA collection..

  • +8

    This need attention, credit to 'pgsheng'

    This involves giving permission for us to:

    . Notify your GP or other healthcare professionals of your results

    . Collect electronic copies of your past and future health records (e.g. we may send your identifying details to other organisations to obtain this information).

    • +1

      And share with the cops and gov.co etc.

    • Oh, but we respect your privacy… (after we've hand-delivered your results to every mailbox in your suburb together with your home address and identifying photo we screen-grabbed off Facebook). Hw do scum like this get away with a 100% lie.

  • Can you give false information? Has anyone tried?

    • +2

      Well I'm trying it now with fake name and whatnot. Will see how it goes

  • +6

    I'll just let my dog lick the swab.

  • +4

    Ha. You'd have to a real idiot to give your information to a private company to get something back for "free".

    A friend sent me a Facebook link on Snapchat which showed a TikTok video that explains how these corporations use your data for their own personal gain.

  • +1

    What kind of counselling and support is available for those who receive results which show some potential issues?

  • +2

    Consider upping you income protection and life insurance before doing these sorts of tests

    • Why?

      • +1

        Once you know you have things wrong with you, it has to be declared to those insurance companies when signing up for new policies or increasing the amount of protection you have generally. Unless someone else knows otherwise..

      • +1

        Because these tests can be used during the underwriting process

      • When you apply for or change income protection or life insurance policy, the new policy has to be underwritten, and you have a duty of disclosure to be honest about your pre-existing conditions and test results, and these can be used to add extra loading (higher premiums) or exclusions to your insurance. Note that this is different from private health insurance, which does not do individual risk assessment, and does not charge you extra or exclude you from insurance based on medical history.

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