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Register for a Free DNA Test for 3 Specific Conditions (10,000 Tests Will Be Offered to Persons Aged 18-40) @ Monash DNA Screen

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Register for a Free DNA Test for 3 Specific Conditions (10,000 Tests Will Be Offered to Persons Aged 18-40) @ Monash DNA Screen
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MiCCAS on 21/08/2022 - 22:14 dnascreen.monash.edu (16303 clicks)
Last edited 22/08/2022 - 13:46 by 1 other user

DNA testing can save lives by helping to take preventative action against disease risk. DNA Screen, led by Monash University, is offering secure, free DNA testing to identify risk of cancer and heart disease that can be prevented or treated early.

One in 75 Australians have one of these DNA variants, but many don’t know it. DNA Screen is offering 10,000 18 to 40-year-olds across Australia a free DNA test to look for variants that increase the risk of some cancers or heart disease.

A saliva sample, collected simply at home, is all the test requires.

The world-first DNA Screen pilot study is funded by the Federal Government and led by Monash University, in collaboration with institutions and researchers from around Australia. Personal data collected by the study is private and confidential.

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closed Comments

  • AshFon on 22/08/2022 - 10:53
    +4

    DNA test results do not affect private health insurance in Australia. However, DNA results can be used by life insurance companies at the time of underwriting risk-rated policies (e.g. death, income protection, and permanent disability insurance). This is only relevant if you wish to apply for such policies after undertaking DNA testing.

  • poida on 22/08/2022 - 11:02
    +6

    Interesting, but no thanks. They would have a better participation if it was completely anonymous. You dont need user personal details and the need to trace previous medical history and to contact gp etc. The terms and conditions are too dodgey.

    Just do an anonymous test, give results and let users know the options and let them decide what to do.

  • superkieu on 22/08/2022 - 11:28
    +2

    What happen to our DNA Data after the tests were done?

  • BargainBuddy on 22/08/2022 - 11:32
    +5

    Cannot agree more with this
    "If it's free you are the product."
    In this case your DNA data is the product.

  • Robski7777 on 22/08/2022 - 11:48
    +4

    Nice try FBI…

  • JonSteele on 22/08/2022 - 13:19
    -1

    So now if your above 40 your basically dead to the Government. Should be up to 50 not 40, and triggers being family history of cancer in family. Why waste value on under 40 when under 50 you can gain better details and info to help future generations by seeing the full development of cancer.

    • muwu on 22/08/2022 - 20:02
      +3

      Deal on a bargain website: Free genetic testing for chronic disease risk conducted by a tertiary research institute

      So now if your above 40 your (sic) basically dead to the Government

      …

      Boy, that escalated quickly… I mean, that really got out of hand fast. It jumped up a notch.

  • iNeed2Pee on 22/08/2022 - 13:23
    +1

    I would rather know I am at risk of a disease than the health insurance company trying to figure out a way not to pay out regardless.

    • SausagesPizza on 23/08/2022 - 08:06

      That is not the only risk…

      There is a risk a certain subset of trial participants commence a course of treatment for some disease which they never required. The website conveniently shields this outside the risks section. Furthermore, we all know that not all treatments are without their own risks.

      I wish they would make this clear upfront, otherwise this is a good trial and I would support the community to get behind it.

      The nature of science means that a DNA sequence marked for increased likelihood of risk a condition such as high cholesterol, in one year might not be relevant in another year.

  • lordezekiel on 22/08/2022 - 13:33
    +2

    PARANOIA INTENSIFIES

  • Target3 on 22/08/2022 - 13:59
    +4

    Gov funded DNA data collecting to see if the vaccine did it's job 💀

    • Ham Dragon on 22/08/2022 - 14:16

      Pretty sure they'd choose a larger & broader sample size (ie outside the age ranges requested), or just demand pathology providers hand over samples, don't you think?

  • Ham Dragon on 22/08/2022 - 14:14
    +11

    My wife and I were invited to participate in genomic research into 750 severe, childhood-onset genetic conditions when she was pregnant with our first child. As we agreed to share our data with researchers, it was free (usually $1500 or so). It was entirely permissible to opt out of sharing the anonymised data with other research institutions and/or pharmaceutical companies. I didn't blink when given the opportunity to participate, as it allowed me to sleep much easier after getting results back that neither of us had any defective genes associated with the conditions screened for. To those doubting the merits of the Monash study (maybe because you have privacy concerns, maybe you are peak OzBargain & want to save money on insurance), consider any children you will/already have. Wouldn't it be better to know if they have family history, or genetic predisposition to particular illnesses, and potentially prevent them from having to suffer?

    • SausagesPizza on 23/08/2022 - 08:04

      Well, have you had your test again? It is possible that the certain gene sequences may have changed as updated data has come along.

      Certain gene sequences that were held to be increasing the likelihood of a condition may no longer be relevant. The sample sizes are so small for these studies that I fear one day people are being mislead into taking a preventative course of treatment that itself has its own risks based on a false assumption.

      Theranos all over again.

      The problem is that we need people to share their data. This is in fact just a medical trial. If you are just going to do it without sharing the data, then the provider might end up with very skewed results. There will also need to be followup studies to determine if those genes are actually causing that type of illness. This is the nature of science that changes.

      • Ham Dragon on 23/08/2022 - 09:32

        Without knowing their methods, it's probably not fair to cast too many aspersions. They want 10k participants for this one, which is a pretty decent sample size. My understanding is this sort of research differs from a clinical trial wherein many different variables are at play in terms of a disease responding to a particular drug or treatment.

    • hotsnakes on 23/08/2022 - 13:54
      +1

      Hello fellow Mackenzie's mission participant. I am totally with you on your perspective, on balance the benefit of knowing outweighed the risk of it returning a negative outcome.

  • Shadowsfury on 22/08/2022 - 15:59
    -1

    How does this differ from getting a 23andme test done (other than screening for just 3 things rather than multiple)? I know in Australia you can't access the health DNA side of things only ancestry.

    But I got a friend to bring across a test kit for me from the US and post it once he returned there.

  • morediscount on 22/08/2022 - 17:12

    Preparation for clone wars

  • morediscount on 22/08/2022 - 17:22

    What if DNA shows I'm human but I identify as a wolf ?

  • SausagesPizza on 23/08/2022 - 07:50

    How can we trust the accuracy of this type of DNA test? How many previous tests have been run against trial patients?

    How do we know if the DNA sequences you are testing for are actually cancer causing or not? This appears to be a huge disclaimer which should be immediately flagged on the first page upon signing up. This is a medical trial. There is improper disclosure…

    How do we avoid a Theranos situation? (For those who do not know: Some people who had certain diseases were told they did not have the disease, whilst others that did have the disease likely did not seek treatment as a result of a clean test)

  • vbt on 26/08/2022 - 12:00
    -4

    Read the T&C's sheeple. Take your mask off first.

    • jackspratt on 27/08/2022 - 00:39

      But if I remove my mask doesn't that increase my likelihood of being infected by 5G? 😂

      • Wardaddy on 30/08/2022 - 05:18

        Only on Band 28.

  • [Deactivated] on 29/08/2022 - 17:08

    free DNA testing to identify risk of cancer and heart disease that can be prevented or treated early

    I probably would've done it if it was via medicare.

  • Wardaddy on 30/08/2022 - 05:17
    -1

    Ageist!!!

  • Thrifty Dan on 30/08/2022 - 12:46
    -1

    I am too old for this!

  • Mokr on 08/09/2022 - 13:52

    Did anyone get a email /call - told last week might be contacted - over 20k people - no contact from them

  • George Washington on 29/09/2022 - 19:12

    has anyone received one?

    • stickyfingers on 01/11/2022 - 01:35

      Yes. I received an email on October 6th inviting me to complete a consent form and register to receive my kit.

      The consent form took me through the implications of how this could affect me in the future with insurance policies, etc.

      It also covered what would happen if they found I was predisposed to something. It mentioned I would be contacted by a genetic counsellor to discuss it in further detail with.

      There was also a section about if I wished to opt-in/out of my results being stored, supplied to others, etc. All of the reasons for this were well explained on the website and opting in or out would have any effect on my participation in the study.

      At no point did I feel pressured to proceed. I did however and received my test in the mail around two weeks ago.

      The kit itself was manufactured by DNA Genotek. It came in a simple box with a tube you put one loogie in, popped on a small tub to release some lovely smelling chemical (that preserved it I assume) into the vial, gave it a shake, and put the cap on. The vile went back into the box which was prepaid and into the red AusPost box.

      Just over a week later and I received an email stating that it was received and I'd get my results in the next 12 weeks.

      Apart from what I mentioned above, I have received 2 or 3 surveys asking how the process was and how I felt about the whole thing. All were optional.

  • scrimshaw on 01/11/2022 - 00:32
    +1

    commenting reopened

  • XJX on 13/11/2022 - 09:55
    +1

    I got the email saying I can proceed but with consent to provide this information to your GP, the government, and also access past and future health records, this is a serious privacy breach. Especially as the results will affect insurance policies (life insurance, and potentially health in the future as policies can change)

    • tommynolips on 16/12/2022 - 21:26

      Err it's not a breach if they give you the option to opt out.

  • yummycoot on 30/11/2022 - 12:21

    DNA test results do not affect private health insurance in Australia. However, DNA
    results can be used by life insurance companies at the time of underwriting risk-rated
    policies (e.g. death, income protection, and permanent disability insurance). This is
    only relevant if you wish to apply for such policies after undertaking DNA testing.

    information sheet

  • KegofCanz on 28/02/2023 - 17:41

    Thank you for your patience in awaiting your test result.
    We did not find a high-risk DNA variant in your sample. We have emailed you a PDF report, which includes further information.

    YEAH BOI

  • easternculture on 27/06/2023 - 16:10

    Got my invitation.

    However not sure if i should enrol.
    Better not to know if i have a fatal future medical condition

  • Iwantthebestprice on 09/10/2023 - 15:53

    Just got my invite, strange I got it this late I assume Monash is having issues trying to find participants. Has anyone here who has done the test had results come back which identified a faulty gene?

    • BlueSky84 on 19/10/2023 - 19:45

      Same here. Just received invitations recently and completed the sample collection today and mailed it out.

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