What Do People Use My Health Record for?

Has anyone found any benefits to My Health Record? Have they used it to view anything?
I'm keen to know your thoughts since their website says 23 million Aussies have one.

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Comments

  • +2

    Viewed it: Yes, just to see what it said.
    Benefits: None that I can determine.

    • What was there? Not specially but anything interesting?

      • +1

        Nothing interesting in mine.
        Just vaccination history for the last couple of years.

  • +1

    Mine is blank but I am healthy

    Touches wood

    • Shouldn't it have your vaccination records?

      • Assuming the practice has been uploading the vaccines to the Australian Immunisation Register…. which they should.

      • When I get it in a few weeks - sure

        All it says now is

        Ask your doctor to upload a summary of your health
        There is no Shared Health Summary in this My Health Record. Ask your primary healthcare provider (usually your GP) for more information about uploading a Shared Health Summary. You can also add or edit information below in the Personal Health Summary.

  • +2

    I have been in hospital a few times in the last 5 or so years and as far as I'm aware it was never referred to to look at past history. It seems a bit useless TBH.

    • All the health professionals I've spoken to (and with me in the field, I know a few…) absolutely none have ever referred to it. Not specialists, doctors, pharmacists, ambos, nurses….

      Sure, they upload the data if required/requested but never have they gone in to look at a patient's record.

  • +5

    I work with My Health Record a lot (technical side) and there's certainly benefits if you end up in hospital and they need to view your records. Or if you were to change GPs and your medical records haven't been sent over.

    As an example your Shared Health Summary is going to have information on the following: Allergies, Adverse Reactions, Medications, Medical History and Immunisations. There's a lot of important information there.

    Another example from a hospital's point of view. Someone presented to emergency afterhours suspected of having a blood clot. They had a blood test a day prior but the GP was closed so the doctors couldn't simply call the practice. The other issue is that the test was conducted by one of Healius labs and at the time they weren't uploading results to My Health Record. The hospital had to contact the lab after hours to try and get hold of someone who could provide them with the results. Had Healius uploaded to MyHR (finally doing it this month) then they could have accessed the record within minutes.

    It's worth noting that there's been a lot of funding for years for GP's to register and upload X amount of patients to MyHR. You also hope that the GPs and Hospital staff bother to check MyHR too. Unfortunately it's still a real after thought.

    • Hey I wonder if we ever worked together. I was working at DHS in Medicare as an IT cadet when My Health Record was being introduced

      • +1

        Nah unlikely I work with a national IT MSP with big healthcare contracts. I wasn't involved with My Health Record at the time of its introduction but have been involved in the testing and roll out of eScripts.

  • -7

    Pretty useless, they should add integration into Apple Health.

  • +1

    The only thing in my MyHealth record is prescriptions, pathology and imaging reports, and hospital records. Nothing from my many GP visits, and nothing from specialists.

    • +1

      Next time you see your GP ask them to upload a shared health summary into your My Health Record. In the major clinical software products it only takes a couple of clicks šŸ˜‰

      • +1

        Last time I asked, they said it wasn't a priority for them.

        • +1

          That's pretty shit but they really have no obligation to do it anyway. I wonder if they're aware they can get funding to do it šŸ¤”

  • Jack all My practice still hasn't uploaded any files dr say clinic is so busy etc etc I do see only the latest flu jab and covid

  • +2

    i opted out on when it was first introduced

    however, don't all medical test results get automatically uploaded? that would be useful

  • To make sure I'm still alive…
    Wait - I opt out of that one! aaaahhhh… that's me f@r4ed… must be dead!

  • +2

    I thought being on it would make my life easier if I wanted to see another GP.

    For some reason, it didn't. My new GP still had to ask my old GP for all the information, and Laverty is apparently being pain in the ass to contact to get the test results or something. I still don't know if my new GP was able to get all the information he needs.

    • Laverty is apparently being pain in the ass to contact to get the test results or something.

      Guessing here, but they've probably put most of their resources on the Covid tests.

      • It was before COVID outbreak was happening in my state (around a month and a bit before we started the lockdown), so I don't know. I don't know whether they were helping NSW counterparts or whether they had other issues etc etc.

      • Since they're part of Healius most of their COVID swabs would be sent to QML in Queensland.

        If you're in Queensland don't go stealing Toll packages. There could be a positive swab inside.

  • +1

    My Health Record in theory should be wonderful for finally integrating a person's healthcare amongst different providers. In practice it's a white elephant (for now).

    They really haven't cracked the use case for doctors to upload. The incentive for uploading doesn't actually encourage regular uploads of useful information and nor is it time efficient to upload.

    I do try to upload useful info as a GP whenever patients ask but it's not automatic which really decreases the effectiveness of it.

  • +2

    My only concern was the Government was talking about sharing information with third parties like Health Insurance providers. I think you can set privacy options but I havenā€™t bothered going back.

    • I had not heard the Health Insurance part but I agree with you in general our government only continued to diminish trust.

      In my opinion Surveillance Legislation Amendment (Identify and Disrupt) Bill 2021 gives the ability with out a warrant to access this data.

      If think otherwise please state.
      If your answer is well they were always spying on us this just makes it legal, please kindly move to a Azerbaijan

      Personally I see value in eHealth, but the cost of PCEHR now called My Health Record is insane for how simple the features are. Health Level Seven seems like a project built by people with more imagination than skill. FHIR was a good opportunity but once again wasted by trying to solve everything in one spec.

      • If this was limited to medical personnel, who need to view my records to provide me with medical care, I wouldnā€™t have an issue. Also, I would be happy if general information was provided to hospitals, etc, for planning. Iā€™m not so keen this information is provided to private industry third parties.

        I donā€™t think anyone needs a warrant to provide someone with access to medical records to provide immediate care. That be the way of people dying whilst the red tape is gone through.

        The problem with these projects is usually scope creep and then pull back when they, finally, realise what the bells and whistles are costing. There is a lot more development that doesnā€™t get implemented because they just couldnā€™t make it work. The real problem is that large organisations, not just Governments, are really crap at requirements definition and up front project assessment. Iā€™ve worked for a few large organisations, in my time, and they all have the same problem. Big announcements, half delivered projects signed off as ā€œcompleteā€ and then, when you identify shortcomings, these are considered as post implementation enhancements and the department dumped with using the system bears the cost of any mods to make it work. I wonder if the reluctance from medical personnel to use it might be a terrible front end interface.

        • That be the way of people dying whilst the red tape is gone through.

          To be clear I'm not suggesting that. Nor does the legislation I referenced give any power or limits to doctors.

          • @deme: Wasnā€™t implying it was. Just saying we need to make sure any limitations donā€™t get in the way of, genuine, care.

    • It's illegal for insurance or your employer to access or disclose information in your My Health Record. They strengthen the laws surrounding the privacy of it ages ago.

      • Thanks for the update. My issue isnā€™t, just, individual records it would, also, be with providing overall information; even without identifiers. Is that the case as well?

        • De-identified information would be used for research purposes and not given to insurance companies.

          • @Clear: Hopefully the info isnā€™t being ā€œback dooredā€. However, I donā€™t have an issue with generalised info being used for, genuine, medical research. Thanks for the response.

            • @try2bhelpful: I'd be more worried about the information being stored at your GP. A higher chance of that information getting unauthorised access. Pretty much all of them send de-identified information everywhere else though for research as it's good money.

              • +1

                @Clear: Hopefully they arenā€™t selling it to the ā€œEmbarrassing Bodiesā€ TV show.

  • Totally useless as far as I am concerned. I for one really want this to work, mostly for the reasons some have touched on, that other doctors have access to your information so you don't have to keep repeating stuff over and over again.

    The only info on my record so far is blood test results, and immunisations. No health records of any sort, and I see a GP, an orthopedic surgeon and a cardiologist who only communicate with those generic specialst letters to each other. I have had 3 trips to Emergency in the last 18 months or so, and they ask the same questions over and over again - even though I go to the same hospital and I have a file there. Everything should be on the MyHealth record so they can see all my health history. What happens if I go to a different hospital? Back to square one and start all over again. It just gets me to screaming point some days. Why is something so simple, so hard?

    • The reason why you get asked the same questions each time even though they have your record, is because NOBODY trusts records, and for good reason. If those records are wrong, they need to answer the question "Why didn't you ask the patient yourself to confirm?". There's usually no good reason other than the fact you physically cannot answer the question.

      And for this same reason, the data in MHR is pretty much useless. Maybe as a way to double-check the information you get from a patient, but the fact it's hardly ever referred to says something about the usefulness of this whole project.

  • What Do People Use My Health Record for?

    My health record.

    • +1

      Shit answer even by your standards

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